While the previous post focused on the public sector influence on palliative care, this week will transition the focus to the private sector which is composed of companies, organizations, and individuals who are not under the umbrella of the government.
As I highlighted previously, a few organizations significantly paved the way for Palliative care and promoted for its motion from obscure to mainstream. The National Hospice and Palliative Care Organization (NHPCO) has worked tirelessly to advocate for and educate the public on palliative care to optimize end of life care and quality of life (1, 2). Other key private sector organizations that originally played a role in promoting palliative care as a specialty include the Robert Wood Johnson Foundation (RWJF) and the George Soros’ Open Society (GSOS) (3). RWJF serves as an organization on the verge of the future of health care by supporting research and innovative ideas for the advancement of multiple health topics, including palliative care (4). Similarly, the GSOS has advocated for recognizing and “responding quickly to the challenges and opportunities of the future” (5). While GSOS encompasses a variety of topics including media and governance, they include health outcomes (i.e. palliative care) as one of their primary focuses (5). Another important private sector organization that produced the original palliative care guidelines is the National Consensus Project for Quality Palliative Care (3).
When discussing palliative care, it is imperative to recognize the work of the Center to Advance Palliative Care (CAPC). This organization focuses mainly on the implementation and incorporation of palliative care into various health systems and organizations (6). Another important private sector organization that has significantly promoted the advancement of palliative care and H.R. 3119 is the American Academy of Hospice and Palliative Medicine (AAHPM) which is a membership organization aimed to advance palliative care through “education and training, resources, networking, and advocacy” (7).
It is important to note that the AAHPM and NHPCO worked together to create an imperative and ground breaking organization known as the National Coalition for Hospice and Palliative Care (NCFPC) (8). This coalition has gradually included multiple organizations to create a strong and united force to promote and advocate for palliative care (8). Furthermore, this coalition is on the forefront of policy and regulatory movements including H.R. 3119 (8).
On the other end of the advancement of palliative care is the National Palliative Care Research Center (NPCRC). This organization is unique as it is the first establishment to create an environment for the collaboration of small scale investigators conducting research in the area of palliative care (9). This is significant because palliative care research remains an under-acknowledged focus that is often ignored by large research corporations. By facilitating the exchange of information between current researchers, this organization is able to actively advance the specialty of palliative care (9).
It also important to acknowledge organizations who have not only supported palliative care as a specialty but have acknowledged open support for H.R.3119. These include the following:
-American Cancer Society Action Network
-American Geriatric Society
-American Academy of Pain Management
-American Heart Association/American Stroke Association
-Hospice and Palliative Nurses Association
-National Association of Social Workers
-St. Baldrick’s Foundation
-Visiting Nurses Associations of America
-Oncology Nursing Society (10)
While the advancement of palliative care and H.R.3119 is dependent on the public sector and policy; private sector organizations have paved the way and continue to advocate and lobby for the much needed changes at the government level.
Photo Credits (in order of appearance):
Header: http://www.chpcc.org/education-research/hope-magazine/hope-magazine- 2012/hope-magazine-2012/
- Connor, S. R. (2007). Development of hospice and palliative care in the United States.OMEGA, 56(1), 89-99. doi: 10.2190/OM.56.1.h
- National Hospice and Palliative Care Organization. (N.D.). National hospice and palliative care organization. Retrieved from http://www.nhpco.org/nhpco-0
- Loscalzo, M. J. (2016). Palliative care: An historical perspective. American Society of Hematology Education Book, 2008(1), doi: 10.1182/asheducation-2008.1.465
- Robert Wood Johnson Foundation. (2015). How we work. Retrieved from http://www.rwjf.org/en/how-we-work.html
- Open Society Foundations. (2016). About us. Retrieved from https://www.opensocietyfoundations.org/about
- Center to Advance Palliative Care. (N.D.). About the center to advance palliative care (CAPC). Retrieved from https://www.capc.org/about/capc/
- American Academy of Hospice and Palliative Medicine. (N.D.). AAHPM and the specialty of hospice and palliative medicine. Retrieved from http://aahpm.org/about/about
- National Coalition for Hospice and Palliative Care. (2014). National coalition for hospice and palliative care. Retrieved from http://advancingexpertcare.org/national-coalition-for-hospice-and-palliative-care/
- National Palliative Care Research Center. (2013). About the center. Retrieved from http://www.npcrc.org/content/16/How-is-the-Research-Center-Unique.aspx
- American Academy of Hospice and Palliative Medicine et al. (2015). Support letter to Representative Engel and Representative Reed. Retrieved from https://www.socialworkers.org/advocacy/letters/2015/PCHETA_Support_Letter_114th_Congress-150721.pdf